Amy Lee, the iconic lead vocalist of Evanescence, has long been recognized for her powerful voice and emotive songwriting. But now, she’s using that voice for something deeply personal and impactful. In a heartfelt announcement that moved fans and advocates alike, Lee unveiled the launch of the Robby Lee Foundation, a $6 million initiative dedicated to transforming epilepsy support for children. Named in honor of her late brother, Robby, who tragically passed away from complications related to epilepsy, the foundation seeks to fill the glaring gaps in treatment, education, and emotional support surrounding pediatric epilepsy.
The Robby Lee Foundation is not merely a tribute—it is a commitment. Amy Lee has poured her grief, passion, and hope into an organization designed to create meaningful change. “This isn’t just about remembering Robby,” Lee shared during the foundation’s launch event. “It’s about making sure that no other family has to endure the kind of pain we did without support, knowledge, and community.” With initial funding of $6 million, the foundation aims to address the systemic shortcomings in epilepsy care and raise awareness about the condition, particularly in children.
One of the core goals of the foundation is to provide comprehensive resources for families navigating an epilepsy diagnosis. For many parents, the moment their child is diagnosed is both terrifying and confusing. Through easily accessible information, 24/7 support hotlines, and digital resource centers, the Robby Lee Foundation is building a network of care. Additionally, the foundation will partner with hospitals and schools to offer epilepsy training for educators and caregivers, ensuring that children are not just treated, but understood and supported.
A significant portion of the foundation’s funds will be allocated to advancing pediatric epilepsy research. Amy Lee has collaborated with neurologists, researchers, and children’s hospitals across the U.S. to identify the most promising studies and treatment innovations. The foundation will offer annual research grants aimed at uncovering new therapeutic strategies, improving diagnostic tools, and eventually working toward a cure. This commitment to research honors Robby’s memory in the most profound way—by fueling hope for other children and their families.
The emotional heart of the Robby Lee Foundation lies in its support programs for children living with epilepsy. These programs include art and music therapy sessions, which are particularly close to Lee’s heart. As a classically trained pianist and composer, she believes in the healing power of music. “Robby always responded to music—it calmed him, made him smile, and brought a little peace,” she recalled. Through these therapeutic offerings, the foundation hopes to give children an outlet to express themselves and a sense of normalcy amidst their health challenges.
In addition to therapeutic services, the foundation will also provide scholarships for children with epilepsy. Recognizing that chronic illness often affects a child’s educational opportunities, the Robby Lee Foundation’s scholarship fund will support students from elementary through college levels. This initiative not only promotes academic success but also aims to inspire confidence and resilience in young people living with epilepsy.
Amy Lee’s efforts extend beyond clinical and educational realms. The foundation is also championing legislative advocacy. By working with lawmakers and advocacy groups, the Robby Lee Foundation will push for policy reforms that improve epilepsy care funding, mandate school training, and enhance insurance coverage for neurological treatments. Lee has already begun engaging with healthcare policymakers to raise awareness and drive meaningful change at the legislative level.
Public awareness is another pillar of the Robby Lee Foundation’s mission. Epilepsy remains widely misunderstood, often stigmatized, and rarely discussed openly. The foundation plans to roll out national campaigns, including short films, social media movements, and public service announcements featuring real stories of children living with epilepsy. Amy hopes that by putting a face to the condition—especially her brother’s—she can humanize the struggle and foster empathy.
Since its launch, the Robby Lee Foundation has received overwhelming support from the public and the medical community. Fellow musicians, epilepsy researchers, educators, and
